Sailing gives visually impaired child ‘another sense of life’

Vennisa says Tadiwa is such “a funny boy”, adding: “When he walks in the room, he makes everyone smile.

“He was an easy baby, and then after his first birthday, he started losing weight.”

When it was discovered that it was from a brain tumour, she says it impacted everything: his body temperature, his vision and “every hormone in the body”.

But it does not stop him.

“I have a go at everything”, he says.

This means growing vegetables on his family’s allotment, drumming, playing the piano and guitar, acting and taking on the roles of Robin Hood and Mrs Trunchbull in a production of Matilda.

He says it was so good as he could be “evil and funny”.

Since he was introduced to the Ellen MacArthur Cancer Trust, he has gone every year.

“I was so scared; it was like stepping into a whole new world,” Tadiwa says.

“It has helped me get another sense of life, given me a sense of belonging.

“The hospital was my second home; I lived there, I’ve been through so much, I’m just shocked I’m here.”

He says it is “amazing” that the tumour is now under control, but his eyesight will be impacted forever.

“Life is short, and you should just live it,” he adds.

He says sailing has also brought him many new friends.

“Everyone is in the same boat as you – literally,” he jokes.

Vennisa adds: “We are so proud of him; he’s such a resilient boy, he’s so happy”.

“He’s the one who’s kept us going.”